(1 Jan to 6 Nov 2010)
and the
International Brain Tumour Awareness Week
(31 Oct to 6 Nov 2010)
Greater Collaboration Greater Knowledge Greater Hope
 The International Brain Tumour Awareness Week commences in days. Are you ready? |
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website
The International Brain Tumour Alliance (IBTA) was established during the conference of the World Federation of Neuro Oncology held at Edinburgh (UK) in May 2005.
It seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours.
Below:
Some of the
fifty people from eleven countries who attended the inaugural meeting
of the IBTA held on 7 May 2005 in
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The
IBTA has published a 114 page colour magazine which it will send for
free to all newly-diagnosed brain tumour patients or their
caregiver/family, depending on available supplies. You can check the feedback from our readers here. Please go to the request page and fill in the form to receive your free copy. Institutions making bulk orders should contact chair@theibta.org or kathy@theibta.org to discuss payment of the freight cost from the UK to your country. |
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The
IBTA has published a 62-page booklet: "The First Documented, Modern-Day Brain Tumour Surgery for a Glioma" It tells the story of Rickman John Godlee's historic operation in 1884. |
"Brilliant"
(Neuro-oncologist, UK) "A remarkable historical booklet" (Neuro-oncologist, USA) "Fascinating ... I really enjoyed it" (Neurosurgeon, Australia) |
Click here to send us your postal/land address details to receive a free copy of the 114 page 2005 - 2010 Anniversary issue IBTA magazine.
The IBTA welcomes donations and grants in support of its work. If you would like to make a donation, please click on the link below :
17 May 2010: The latest E-News bulletin has been distributed to the IBTA's contacts. Click here to read a web version. Postal distribution has also commenced of the IBTA's anniversary magazine to more than 4,000 recipients worldwide. Delivery could be affected by airline delays resulting from the volcanic ash problem.
18 April 2010: The latest E-News bulletin has been distributed to the IBTA's contacts. Click here to read a web copy. The IBTA has also released a Brain Tumour Patients' Charter of Rights, which is available here.
14 March 2010: The latest E-News bulletin has been distributed to the IBTA's contacts. Click here to read a web copy. Click here to take part in a IBTA survey about ALA flourescence-guided surgery for glioma. Click here to take part in a IBTA survey about a brain tumour patient's Charter of Rights.
12 February 2010: The latest E-News bulletin has been distributed to the IBTA's contacts. Click here to read a web copy.
February 28th marks Rare Disease Day 2010 and this year's focus is "Bridging Patients and Researchers". Rare diseases, including rare cancers like brain tumours, are today a public health priority in the European Union. By further raising awareness of these diseases on a special international commemorative day better outcomes and greater hope may be achieved for those who suffer with rare conditions. For further information see http://www.rarediseaseday.org/ or contact the European Organisation for Rare Diseases (Eurordis) at http://www.eurordis.org/
30 January 2010: The IBTA is surveying its contacts about the ethical issues underlying the Mo Mowlam (UK) case and will report the results in a de-identified form in a furture issue of the E-News. Those who have not received an individual email to participate in the survey can use this link to participate: Click Here to take survey
17 January 2010: The latest E-News bulletin has been distributed to the IBTA's contacts. Click here to read a web copy.
Click here to view a list of the 182 supporting organisations in 2009.
Organisations wishing to be listed as supporters of the IBTA's 2009 World Walk and the International Brain Tumour Awareness Week (31 October - 6 November 2010) should contact: chair@theibta.org or kathy@theibta.orgPlease note: for your organisation or group to be a "supporter" of the Week and Walk, the IBTA requires no financial commitment or fee to be paid to us by you. All we are asking for is your enthusiasm in supporting and promoting these events and for allowing us to add your name to our list of supporters. Thank you.
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Notes:
The intention of the founding meeting was that we seek to represent all
tumours of the central nervous system. As is the practice in the
scientific literature and clinical use, we use the words "brain
tumour", not "brain cancer". |
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Copyright 2007-2010 © The International Brain Tumour Alliance [IBTA]. All Rights Reserved. The IBTA is a not-for-profit, limited liability company incorporated in England and Wales, Company Number: 6031485. The registered address is: c/o Roxburghe House, 273-287 Regent Street, London W1B 2AD, UK. Correspondence should be addressed to the Secretary (details on the Contacts page) not to the registered company address. Click here for the Contacts page.
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