Our alliance

The IBTA brings together over 100 organisations and charities from around the globe. Many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access.

We are led by people with first-hand experience of living with a brain tumour. By working together with other organisations and initiatives we can achieve more.

 

Raising Awareness 2016-17

Our international community of brain tumour organisations and individuals take part in events and walks year-round to raise global brain tumour awareness.

Click this image to see highlights of just some of the accomplishments in 2016 and the first six months of 2017.

 

The IBTA Brain Tumour Magazine

Our annual magazine is sent for free to recipients in 113 countries and widely distributed at international neuro-oncology and cancer conferences. It includes interviews with healthcare professionals, patients, caregivers and advocates, information on new treatments and other news from our international brain tumour community.

 

Raising awareness

It is extremely important to raise awareness of brain tumours, which are rare diseases. We actively encourage awareness-raising and fundraising activities around the world. The IBTA established the International Brain Tumour Awareness Week, and the Walk around the World for Brain Tumours, now in their 10th year

Click this image to find out more about how to get involved and how to register or report your activity.

 

Events and Conferences

The IBTA is pleased to list on its website the various conferences and meetings for the neuro-oncology scientific and patient communities.

We also organise the biennial World Summit of Brain Tumour Patient Advocates – a unique opportunity for advocates and stakeholders from around the world to exchange ideas on best practice, challenges and advocacy experiences; and build new relationships between organisations and individuals in the brain tumour advocacy field.

 

Advocacy

We are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist.

 

Walking around the world

The annual IBTA initiative, Walk Around the World for Brain Tumours, encourages people to take part in sponsored or unsponsored walks to raise awareness of brain tumours. Miles walked are symbolically ‘donated’ to the target of circling the Earth at the equator (24,901 miles or 40,075 kms)!

Click this image to find out more about how to get involved and view previous years' walks.

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ADVOCACY, AWARENESS-RAISING AND INFORMATION

The International Brain Tumour Alliance (IBTA) is a unique global network for brain tumour patient and carer groups around the world. We work alongside, and represent, members of our community - including researchers, scientists, clinicians, nurses and allied healthcare professionals - to engage in advocacy, to raise awareness and to share information.

IN THE SPOTLIGHT - LATEST ARTICLES AND NEWS

IBTA e-News August 2017 released

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[28th August 2017] The IBTA’s monthly e-News has now been released and has been emailed to all subscribers. Some of the highlights from the July issue include research showing that brain tumour diagnoses in Emergency Department ‘are not rare’, a study suggesting a screening tool for brain tumour spread to the brain in breast cancer…

All.Can group report published: towards sustainable cancer care

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[8th August 2017] A new report written by the All.Can group has now been published in the peer-reviewed periodical, Journal of Cancer Policy. It looks at the need to improve efficiency in cancer care by focusing on patient outcomes. IBTA Chair Kathy Oliver is a member of the All.Can initiative, as are leading cancer experts from the patient advocacy…

New palliative care guidelines for glioma published – IBTA is part of task force

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[14th July 2017] A multidisciplinary palliative care task force of the European Association of Neuro-Oncology (EANO), of which the IBTA’s director Kathy Oliver is a member, has compiled guidelines for palliative care in adults with glioma, which are published in the latest issue of the journal The Lancet Oncology.

Work on the guidelines began in 2015…

IBTA Magazine 2017-18

The 2017/2018 World Edition of Brain Tumour magazine is now available! Request a free copy here or read it
online now.

IBTA Magazine 2016-17

The 2016/2017 World Edition of Brain Tumour magazine is also available. Read it online now.

OUR ALLIANCE

The IBTA Alliance

Click on the map above to find out more about the IBTA alliance

What we do

Advocacy

We collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world.
Find out more

Awareness-raising

We strive for wider public recognition of the unique challenges patients with this devastating disease and their families face.
Find out more

Information

We publish a monthly e-News with items of interest to the international brain tumour community. We also publish a major annual magazine called Brain Tumour which is sent for free to recipients in 110 countries.
Subscribe to Brain Tumour magazine and IBTA e-News

Events and conferences

We maintain a constantly updated list of major regional, national and international neuro-oncology conferences and other meetings relevant to brain tumours.
Find out more

Clinical trials

We maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial.
Find out more

Ways you can support us

We would love to hear from you if you'd like to join our Alliance, help promote the IBTA, become a corporate sponsor, learn more about an awareness-raising event or make a donation.
Find out more

THE IBTA IS GRATEFUL TO ALL THOSE WHO HAVE DONATED FUNDS,
INCLUDING GRANTS FROM THE FOLLOWING COMPANIES AND FOUNDATIONS:
IBTA