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IBTA News

IBTA e-News June 2016 released

[1 July 2016] The IBTA's monthly e-News has now been released and has been emailed to all subscribers.

Some of the highlights from the June issue include:

  • "We've reached an inflection point in our fight against cancer," announced US Vice President Joe Biden, whose son died of a brain tumour, at the 2016 Annual Meeting of the American Society of Clinical Oncology (ASCO 2016), held in Chicago in June
  • Two separate studies find out that elderly glioblastoma patients live longer with combined chemotherapy and radiation therapy
  • A clinical trial has shown that a technology that uses microbubble injections combined with an implanted ultrasound device can disrupt the blood-brain barrier in glioblastoma patients, allowing chemotherapy drugs to enter the tumour
  • A research study points to a link between dopamine and glioblastoma growth
  • Results from a phase 1 trial of Toca 511 and Toca FC, a modified virus that carries a gene into tumour cells combined with a drug that targets the modified tumour cells, have shown that patients with recurrent glioblastoma have extended survival
  • Analysis of blood samples from 110 people who went on to develop glioblastoma has indicated that high levels of vitamin E could be a risk factor
  • Clinical trials for immunotherapy in childhood DIPG tumours, and for young people and children with ependymoma are now recruiting patients
  • An observational study has suggested that people with higher levels of education and greater earnings have a greater risk of being diagnosed with a brain tumour
  • You can read the IBTA e-News June edition online here

Our monthly e-News highlights items of interest to our international brain tumour community and is emailed to nearly 7,000 recipients. It gives a round-up of the latest research and treatment developments, news about brain tumour patient organisations around the world, and key forthcoming neuro-oncology scientific and patient conferences. You can sign up to receive the e-News by registering here.

To see an archive of existing e-News issues, click here.

IBTA e-News May 2016 released

[1 June 2016] The IBTA's monthly e-News has now been released and has been emailed to all subscribers.

Some of the highlights from the May issue include:

  • The World Health Organisation (WHO) has published an updated classification of central nervous system tumours, setting a new standard for brain tumour research, diagnosis and communication..
  • The US Food and Drug Administration (FDA) has given “breakthrough designation” to a poliovirus-based brain tumour immunotherapy, PVS-RIPO, for the treatment of recurrent glioblastoma.
  • The 2016 / 2017 edition of the IBTA’s Brain Tumour magazine will be available for viewing online via the IBTA website from 8th June.
  • A study has concluded that giving radiation therapy in ‘fractionated’ doses, rather than as a single larger dose, does not spare white matter from the late effects of radiation damage.
  • Two published studies have investigated the potential link between mobile phone use and brain tumours: one finding that the increased rates of brain tumour diagnosis seen in recent years cannot be explained by mobile phone use, another finding that tumour formation was increased in mice exposed to mobile phone frequency radiation.
  • Brain Tumor Awareness Month in the USA saw record numbers of people taking part and the Australian Brain Cancer Action Week saw various outreach, educational events and fund-raising activities take place across the country.
  • Clinical trial results have shown that treatment with a cytomegalovirus (CMV) pp65 dendritic cell (DC) vaccine is linked to better than expected survival in glioblastoma patients.
  • You can read the IBTA e-News April edition online here.

Our monthly e-News highlights items of interest to our international brain tumour community and is emailed to nearly 7,000 recipients. It gives a round-up of the latest research and treatment developments, news about brain tumour patient organisations around the world, and key forthcoming neuro-oncology scientific and patient conferences. You can sign up to receive the e-News by registering here.

To see an archive of existing e-News issues, click here.

 

World Health Organisation updates central nervous system tumour classification

Categorising brain tumours[17 May 2016] The World Health Organisation (WHO) has published an updated classification of central nervous system tumours, setting a new standard for brain tumour research and communication between different centers around the world. The revised fifth edition is a major update to the existing 2007 classification and brings the naming and grouping of brain tumours into line with current scientific understanding and technology. For the first time, the new WHO classification combines the genetic information of brain tumours with their histology (the way the tumour looks under a microscope), thus formulating a more accurate concept for how brain tumour diagnoses should be named and structured.

This new classification is the culmination of work by a collaboration of 117 experts from 20 different countries and will allow for more accurate diagnosis, treatment planning and prognosis. With the new classification, brain tumour patients in clinical trials may be stratified into groups that reflect the molecular profile of their tumour, allowing effective targeted treatments to be found more easily. The new classification will also aid researchers by helping them to make more precise analysis of data in the lab, and to accurately compare their results with other institutions.

Within the updated classification, glioblastomas are now organised according to their IDH mutation status, while some entities have been deleted that no longer have diagnostic and/or biological relevance. Newly identified tumour types have been incorporated into the classification and use of the diagnosis “oligoastrocytoma” is now discouraged in favour of astrocytoma or oligodendroglioma. All changes can be found online in the 2016 World Health Organization Classification of Tumors of the Central Nervous System summary.

The IBTA is excited by the publication of the new classification and recognises that it represents a significant step forward in the ongoing journey to improve brain tumour patient treatment and care. The IBTA also extends its gratitude to the many experts whose hard work has brought about the updated classification, which will serve to benefit brain tumour patients all around the world.

IBTA e-News April 2016 out now

[30 April 2016] The IBTA's monthly e-News has now been released and has been emailed to all subscribers.

Some of the highlights from the April issue include:

  • Several leading figures in brain tumour research and care have been appointed to the US Government's newly established 'Moonshot Initiative' to advance cancer research
  • In recently published guidance, the European Medicine's Agency (EMA) has acknowledged the need to bring patients' perspectives of their treatments and illness into future cancer research
  • Following a successful e-Petition calling for a UK Parliamentary debate on brain tumour research funding, Health Minister George Freeman MP has announced a package of measures to improve brain tumour research, diagnosis and treatment.a package of measures has been announced
  • A study has found that glioma patients fare better when given a combination of radiotherapy and chemotherapy, as opposed to radiotherapy alone
  • Both regular aspirin use and childhood chickenpox infection have been linked to a lower risk for glioma
  • The blood pressure medicine prazosin has been found to reduce glioblastoma growth
  • DelMar Pharmaceutical’s experimental VAL-083 treatment for glioblastoma is due to progress to phase III clinical trials

You can read the IBTA e-News April edition online here.

Our monthly e-News highlights items of interest to our international brain tumour community and is emailed to nearly 7,000 recipients. It gives a round-up of the latest research and treatment developments, news about brain tumour patient organisations around the world, and key forthcoming neuro-oncology scientific and patient conferences. You can sign up to receive the e-News by registering here.

To see an archive of existing e-News issues, click here.

 

May 2016 marks the start of national Brain Tumor Awareness Week in the USA and Brain Cancer Action Week in Australia

[29 April 2016] May is national Brain Tumor Awareness Month in the United States - a time when the brain tumour community comes together to raise public awareness of brain tumours, fundraise for research and care, and run educational activities and events. There are countless opportunities for patients, advocates and stakeholders to celebrate achievements and get involved with activities and online awareness building. The social media hashtag for the month is #BTAM.

Race for Hope DC was just one event that took place in May 2015. (Click image to find out about the 2016 walk.)

Race for Hope DC was just one event that took place in May of last year. (Click image to find out about this year's event.)

Of the many events that will be taking place, the National Brain Tumor Society will be holding their annual 'Head to the Hill' advocacy event at Capitol Hill, Washington DC, on May 2-3. It will be attended by hundreds of brain tumour advocates from across the country and the two-day event will include advocacy training and congressional visits (read more here). The American Brain Tumor Association is also holding a variety of walks and fundraising events across the country throughout the month (read more here; an online calendar of all 2016 fundraising events is accessible here).


The start of May is doubly important as it marks the beginning of Brain Cancer Action Week in Australia. Running from Sunday 1st to Saturday 7th May inclusive, a wide variety of events and activities will be taking place across the country and the organisations supporting the week and/or running activities include Cancer Council Australia, Sydney Neuro-Oncology Group, Cure Brain Cancer Foundation, Yellow Diamond Foundation, and Brain Tumour Alliance Australia.

Search online for events or activities in your area – but don’t forget that our IBTA Alliance page and advocacy group information page lists and provides links to more than 60 brain tumour organisations in the USA and 12 in Australia.

Our sincerest hope is that all of the US and Australia-based brain tumour community have a fruitful and encouraging time during their respective brain tumour awareness periods. We would love to hear about your experiences and you can get in touch with us via our contact page. All sponsored or unsponsored walks to raise awareness about brain tumours can symbolically “donate” the mileage covered to the IBTA World Walk target of circling the Earth at the Equator - click here to find out more. You can also find out more about how the IBTA supports the international brain tumour community here.

Finally, if you want to be inspired then take a look at our page dedicated to awareness-raising events that took place across the world in 2015 here.

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