All Posts By

Stuart Farrimond

IBTA e-News February 2016 now out

By IBTA News
[29 February 2016] The IBTA's monthly e-News has now been released and has been emailed to all subscribers.

Some of the highlights from the February issue include:

  • Two glioblastoma treatments are selected as ‘Clinical Cancer Advances’ in American Society of Clinical Oncology’s annual report
  • Brain tumours are found to be leading cause of cancer-related death in teenagers and young adults
  • International study identifies unique subtypes of glioma
  • Proton beam therapy: finding the truth behind the recent headlines
  • A clinical trial of Robotic Laser Thermotherapy will focus on quality of life outcomes
  • An international research consortium finds that asthma, eczema, and respiratory allergies are linked to reduced glioma risk
  • 'Stand up to Cancer Canada' announces their brain tumour research ‘dream team’
  • Experts make their predictions for brain tumour research advances in 2016

View the IBTA e-News February edition online here.

Our monthly e-News highlights items of interest to our international brain tumour community and is emailed to nearly 7,000 recipients. It gives a round up of the latest research and treatment developments, news about brain tumour patient organisations around the world, and key forthcoming neuro-oncology scientific and patient conferences.

You can subscribe to receive the IBTA e-News each month by registering here.

New webpage celebrates our brain tumour community achievements of 2015!

By IBTA News
Photo from Meagan's Walk 2015. Click to see more walks and events that took place in 2015

Photo from Meagan's Walk 2015. Click image to see more walks and events that took place in 2015

[28 February 2016] We have today published a new page on the IBTA website that celebrates the achievements of the international community of brain tumour organisations and individuals who have organised walks and events to raise awareness about brain tumours as part of the 2015 Walk Around the World for Brain Tumours and International Brain Tumour Awareness Week. There are photographs and short reports from a selection of different events and walks that took place last year. Please do take a look – it is incredible to see what has been done for raising awareness of brain tumours around the world! Click here.

If you would like to let us know about an event or walk to be considered for inclusion on the website, please do send an email to chair@theibta.org.  And don’t forget to tell us about what you have planned for 2016 – submit details about walks and events online here.

You can find out more about the IBTA’s 2016 Walk Around the World for Brain Tumours initiative and the International Brain Tumour Awareness Week (22 to 29 October, 2016) here.

Ground-breaking new educational ‘Toolbox’ on Medicines Research & Development launched by EUPATI

By IBTA News
[2 February 2016] A new online Toolbox on Medicines Research & Development has been launched by The European Patients’ Academy on Therapeutic Innovation (EUPATI), offering information to the public on more than 100 topics in seven languages. The toolbox is also a free resource designed for patient advocates – such as those in the brain tumour community – to help them have more meaningful patient involvement.

EUPATI toolbox

EUPATI Toolbox on Medicines Research & Development

The online resource contains more than 3,000 expert materials on the ‘A-Z’ of medicines research and development (R&D), which includes a wealth of fact sheets, graphics, slideshows, videos, recorded webinars, print-ready materials, and a full glossary. It is available to all European patient groups, patient advocates, and anyone who is interested in learning more about the medicines R&D process. The project is the result of a long-term collaboration of expert stakeholders (including patients, researchers and academics). It also follows EUPATI’s hugely successful Patient Expert Training Course, which was launched in October 2014.

The vision behind the toolbox is that the public will use it to gain the knowledge required to make a meaningful contribution to medicines development. All resources are available under a Creative Commons License and can be explored, shared and adapted by users.  Content includes information-rich modules and best-in-class educational materials on discovery research, clinical development, regulatory affairs, medicinal safety, pharmacovigilance and the principles of health technology assessment.

You can access the ‘EUPATI Toolbox on Medicines R&D’ at www.eupati.eu.

Discover more about the ‘EUPATI Toolbox on Medicines R&D’ by watching this video.

For updates, you can follow EUPATI on twitter or via their Facebook page.

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