BRAIN TUMOUR SUPPORT, ADVOCACY AND INFORMATION ORGANISATIONS

Accelerate Brain Cancer Cure

Accelerate Brain Cancer Cure has a singular focus - to hasten the discovery of a cure for brain cancer.

ACT Brain Tumour Network (Australia)

The ACT BT support network meets on the 4th Sunday of the month at Woden Southern Cross Club, Canberra. Convened by Susan Pitt and MaryAnne Rosier under the auspices of Brain Tumour Alliance Australia (BTAA). Email secretary@btaa.org.au or call Susan Pitt on 0404255156 for more information. Freecall 1800 857 221 (free from landlines in Australia)

Addi’s Faith Foundation (United States)

This foundation was created to help fund pediatric brain tumor research as well as provide financial assistance to families who need help caring for their sick child.

Adult Brain Cancer Support Association - Australia (Facebook page)

The ABC Support Association is located in South Australia and is focussed on giving support, encouragement, help and guidance to adults diagnosed with brain cancer, their families, friends and carers.

Adult Ependymoma

A website dealing primarily with adult ependymomas.

Ali's Dream (United Kingdom)

A UK-based charity established to raise funds for research into childhood brain tumours.

Alinoe (France)

Alinoe (Association Lilloise de Neuro-Oncologie) is a patient-oriented organisation providing information and support to brain tumor patients and their families in the Lille area (north of France)

American Brain Tumor Association

The American Brain Tumor Association was the first and is now the only national organization committed to funding brain tumor research and providing support and education programs for all tumor types and all age groups.

Andrew McCartney Trust Fund (United Kingdom) Kingdom

Funds scientific and medical research into the causes of brain tumours, and builds public awareness of the challenges of this disease.

Angels Among Us (United States)

The Angels Among Us 5K and Family Fun Walk is a celebration of life, strength, courage and commitment. This volunteer organization was established to support the mission of hope at the Preston Robert Tisch Brain Tumor Center at Duke (Durham NC, USA).

Anna’s Hope (United Kingdom)

Anna’s Hope is a charity dedicated to giving hope to children and young people diagnosed with a brain tumour. It was inspired by Anna Olivia Hughes who tragically died from a brain tumour aged only three years and eight months and was set up by Anna’s parents, Rob and Carole Hughes and her five Godparents in 2006.

ARTC Sud (France)

Ce site s’adresse à tous ceux qui souhaitent s’informer sur les tumeurs cérébrales cancéreuses et sur la recherche en neuro-oncologie et à ceux qui désirent faire progresser cette recherche.

Association of People Affected by Brain Tumors in Spain - ASATE (Spain)

This organisation seeks to improve the quality of life and welfare of people with a brain tumour.

Association Léa Princesse Eternelle (France)

Léa est notre fille décédée le 10 juillet 2007 à l’âge de 5 ans des suites d’une tumeur cérébrale récidivante : l’épendymome (cancer pédiatrique). A l’issue des deux années de maladie, nous gardons tous dans nos pensées l’image d’une petite fille souriante, joueuse, courageuse et généreuse. Afin de poursuivre son combat contre la maladie, nous, parents de Léa, avons décidé de créer l’association «Léa Princesse Eternelle».

Astro Brain Tumour Fund (United Kingdom)

A UK group offering information, inspiration and hope to all those living with a low-grade brain tumour.

Australian Pituitary Foundation

The APF’s mission is to provide support to those who have experienced pituitary gland conditions. We promote awareness and disseminate information among the medical community, public, pituitary patients and their families.

Michael G. Belz Foundation (United States)

This US group seeks to create Hope: Helping to live and celebrate life after diagnosis. Offering emotional support. Providing resources. Education that promotes a global awareness of research and treatments.

Ben and Catherine Ivy Foundation (United States)

The objective of the US-based Ben and Catherine Ivy Foundation is to fund research that will offer brain tumor patients a wide choice of effective treatments that provide for a long term, high quality life.

Benny’s World (United States)

Benny’s World is a 501(c)(3) non-profit foundation established to fund research to find a cure for pediatric brain stem tumors, specifically targeting diffuse intrinsic pontine glioma (DIPG).

Beyin Tumori Tedavisi (Turkey)

Turkish brain tumour support group.

Brad Kaminsky Foundation (United States)

The Brad Kaminsky Foundation seeks to raise awareness of brain tumors, to raise funds for research, and is also dedicated to providing support and resources to those affected by this disease.

Brain Candy Project (United States)

The Brain Candy Project aims to support the needs of parents/guardians living in the hospital with their children who are recovering from brain tumours and other brain traumas.

b.r.a.i.n.child (Canada)

b.r.a.i.n.child is a group of parents, family, and friends who have the common experience of caring for a child with a brain tumour or who are survivors. We are a volunteer organization providing support, education, and research funding.

BrainLife (Web-based)

BrainLife collects and offers to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical sources in the field of brain (and other CNS) tumor research and treatment. Information is from peer-reviewed journals and medical databases. Some meeting proceedings are included too. The sources (abstracts, references and full-text articles) are republished with their original contents.

Brain and Spine Foundation (United Kingdom)

The (UK) Brain and Spine Foundation seeks to develop research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine. The Foundation also seeks to stimulate a greater allocation of resources across all neurological disorders.

Brain Science Foundation (United States)

The Brain Science Foundation is a (US) nonprofit organization founded by Steven and Kathleen Haley in 2002 based on a realization that little is known in the medical world about meningioma and other primary brain tumors and a desire to fast-forward research on them.

Brains Together for a Cure (United States)

Our mission is to promote awareness of brain tumors and the need for effective treatments.

Brain Tumor Foundation

The Brain Tumor Foundation (BTF) guides and supports patients and families during the turbulent times following the diagnosis of a brain tumor. BTF strives to educate medical professionals and the public about the need for early detection of brain tumours while continuing to offer support groups, medical referrals and informational events.

BrainTumor Foundation for Children (United States)

The Brain Tumor Foundation for Children Inc is a Georgia (US) based support, information, and fund-raising organisation for children with brain tumors.

Brain Tumor Fund for the Carolinas (United States)

The Brain Tumor Fund for the Carolinas (BTFC), is a not-for-profit organization founded in 2003 by Charlotte neurosurgeon, Dr. Tony Asher and retired Bank of America executive, Jim Palermo. The Brain Tumor Fund for the Carolinas is dedicated to increasing public awareness of the impact of brain tumors and to providing support for the development of treatment strategies and cooperative biomedical research related to brain tumors in the Charlotte region.

Brain Tumour Action (Scotland)

A voluntary group based in Scotland which concentrates on support, counselling, education, information and research.

Brain Tumour AhoyHoy (Australia)

Brain Tumour AhoyHoy’s mission is to provide information, support and awareness for patients, friends and family who have or have previously had a low grade brain tumour. Let us provide you with a safe harbour to drop anchor, where you can laugh, cry and just be yourself.

Brain Tumour Alliance Australia

Brain Tumour Alliance Australia (BTAA) is the only national brain tumour patient and caregiver organisation in Australia.

Brain Tumour Association (Western Australia)

The Brain Tumour Association (Western Australia) is a support group for patients and caregivers.

Brain Tumour Foundation of Canada

The Brain Tumour Foundation of Canada is the major non-government brain tumour organisation in Canada.

Brain Tumour Foundation of India

The Brain Tumour Foundation of India is a charity concerned with improving the care and treatment available to people with brain tumours and their families. They work in partnership with other organisations to develop and support services for people with brain tumours. They hope to help all patients in and around Bombay and expand their services to involve the whole country.

Brain Tumour Ireland

Brain Tumour Ireland raises awareness, provides information and support, and promotes and funds
medical research.

Brain Tumour Research (United Kingdom)

Brain Tumour Research specifically funds brain tumour research at UK centres to accelerate progress and improve patient treatments and outcomes

Brain Tumour Research and Support Across Yorkshire (United Kingdom)

Brain Tumour Research and Support across Yorkshire (formerly Andrea's Gift) aims to provide a network of support across Yorkshire for brain tumour patients and their families.

Brain Tumour Society (Singapore - BTS)

Singapore - BTS provides moral and resource support, as well as patient education, for brain tumour patients and their caregivers in Singapore. We also advocate for better patient information and welfare by seeking to raise public awareness of brain tumours and the support that patients need.

Brain Tumour Support Group - Cancer Council Queensland (Australia)

This brain tumour support service provides information about brain tumours and treatments; referral to support and rehabilitation services as well as practical and financial assistance; and regular meetings that give opportunities to meet other people dealing with a brain tumour and hear health professionals discuss topics of interest.

Brain Tumour Support (United Kingdom)

Brain Tumour Support is a UK brain tumour charity which offers help to people whose lives have been affected by a brain tumour, by providing a network of support for the whole journey.

Brain Tumour Support Group, St Thomas’ Hospital, London (United Kingdom)

Everyone is welcome to join this brain tumour support group in London to be held at the Dimbleby Cancer Centre in St Thomas’ Hospital, London, UK. This group is aimed at patients, families and friends of those diagnosed with a brain tumour.

Brainstrust (United Kingdom)

Brainstrust is a UK based brain cancer charity and a community, which supports thousands of people across the country who are affected by brain cancer. Brainstrust works to help patients and carers regain control, and be confident that they are working towards the best outcome for their situation.

 

Brainwaves Brain Tumour Support Group (United Kingdom)

Brainwaves offer the opportunity to meet other people with similar experiences and to find out information about all the issues relating to brain tumours.

Brainwaves NI (Northern Ireland)

Brainwaves NI is a Northern Ireland based charity dedicated to providing support and information to those people affected by brain tumour.

Brian Bedell 2 Young Foundation (United States)

The 2 Young Foundation was founded in 2004 by Brian Bedell and continues to grow each year in his honor. 2YF is a non-proft (501c3) charitable organization that is dedicated to caring for families and patients affected by brain tumours, connecting communities to generate public awareness, and committing funds to further research in curing this disease.

British Acoustic Neuroma Association (United Kingdom)

BANA is organised and administered by people affected by acoustic neuroma, is a registered charity and exists for mutual support, information exchange and listening.

BT Buddies (United Kingdom)

A UK group offering information, inspiration and hope to all those living with a high-grade brain tumour.

BT Survivor group

"A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise."

California Brain Tumor Association (United States)

The California Brain Tumor Association is dedicated to advancing brain cancer research efforts, employing the precautionary principle, outreach, and education.

Central Brain Tumor Registry of the United States

The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain tumors.

Central New Jersey Brain Tumor Support Group - CNJBTSG (United States)

CNJBTSG (United States) Meets in North Plainfield, New Jersey.

CHANCE - Children AgaiNst CancEr (Lebanon)

CHANCE (CHildren AgaiNst CancEr) is a Lebanese association whose mission is to help Lebanese children with cancer or blood disorders receive the best chance for cure and accept their disease.

Collaborative Ependymoma Research Network (CERN) Foundation (United States)

The CERN Foundation is a dedicated group of scientists working in concert to develop new treatments, improve the care of all patients, ultimately leading to a cure for ependymoma.

Charles Warren Brain Tumor Awareness Foundation (United States)

The Charles Warren Brain Tumor Awareness Foundation, based in Georgia, USA, seeks to "significantly raise awareness of the disease of brain tumors so that a cure can be found more quickly". It directly supports the Preston Robert Tisch Brain Tumor Center at Duke University.

Charlie's Challenge (United Kingdom)

Charlie’s Challenge is a UK-based charity which raises money to finance urgently needed research into children’s brain tumours.

Childhood Brain Tumour Association of Taiwan (CBTA)

The mission of the Childhood Brain Tumor Association of Taiwan (CBTA) is improve quality of life and the long term outlook for children with brain tumors from newly diagnosed to survivorship or end of life.

Childhood Brain Tumor Foundation (United States)

The Childhood Brain Tumor Foundation of Maryland "supports and funds basic science or clinical research for childhood brain tumors".

Childrens Brain Tumor Foundation (United States)

The NY-based CBTF, founded in 1988, seeks to "improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors ...".

Chris Elliot Fund for Glioblastoma Brain Tumor (United States)

Education, Awareness, Advocacy and Research (United States). The Chris Elliott Fund for Glioblastoma Research (CEF) is a non-profit organization that raises funds specifically aimed at ending brain cancer through education, awareness, advocacy and research.

 

Clowns in the Sky (United Kingdom)

Clowns in the Sky is a registered UK charity dedicated to the research and treatment of childhood brain tumours and to the welfare of affected children and their families.

Cyprus Brain Tumour Association (CBTA)

The CBTA is an organisation for patients and families. This is a link to the email address for one of its contacts.

Deutsche Hirntumorhilfe eV  (Germany)

A non-profit, German-based independent organisation, which raises funds for the advancement of neuro-oncological research and the improvement of medical health care for brain tumour patients.

Dr Marnie Rose Foundation (United States)

The Dr Marnie Rose Foundation funds brain tumour research at MD Anderson in Houston, Texas (USA).

Ed Evans Foundation (United Kingdom)

The Ed Evans Foundation, in memory of 27 year old Ed Evans who passed away in 2007, is based in Wales, UK, and raises funds for cancer and brain tumour charities.

Ellie Savage Memorial Trust (United Kingdom)

The Ellie Savage Memorial Trust has been founded to help families living in East Anglia (UK) who have a child with cancer or a brain tumour by providing financial support.

Emory Brain Tumor Support Group (United States)

The Emory Brain Tumor Support Group (Georgia, USA) provides an opportunity for information-sharing and support among patients diagnosed with a brain tumor, be it malignant, benign or metastatic.

Ependyparents online support group (United States)

The Ependyparents online support group is a private email list for parents of children with Ependymoma. We are a group of parents looking for knowledge and information on behalf of our children who are too young to make decisions. Group communication is by a private email list hosted by T.H.E. BRAIN TRUST, a 501(c)(3) nonprofit organization specializing in internet based and patient oriented brain tumor support groups. An on-line support group facilitated by Bruce Blount.

Epidermoid Brain Tumour Society

The Epidermoid Brain Tumor Society provides mutual support, information exchange and a connection with others in similar circumstances by support group interaction.

Fighting Ependymoma

Fighting Ependymoma is a charity dedicated to raising funds to support ependymoma research in children and to raise awareness of the disease through public events, information and fundraising activities.

Fitzy's 5 km Run/Walk (United States)

This annual run/walk raises funds for brain tumor research and support activities in honour of 20-year-old Lauren M Fitzgerald who passed away in 2005. Funds are administered through the Berks County Community Foundation.

Florida Brain Tumor Association (United States)

Our mission is to provide hope, support and education to brain tumor survivors, their families and friends; to conquer brain tumors by funding research into their causes and cures; and to enrich the quality of life of those touched by brain tumors.

Fondo Alicia Pueyo (Spain)

This Spanish organisation was created with the mission to promote and support research on childhood brainstem tumors, in order to develop new treatments and drugs that may offer an early cure for all children affected by this terrible disease.

Gerry and Nancy Pencer Brain Tumor Centre (Canada)

The Gerry and Nancy Pencer Brain Tumor Centre is dedicated to improving the lives of people living with brain tumours.

GFME (France)

Glioblastoma fundation Michele Esnault is a French-speaking group for brain tumour patients.

Gray Matters Foundation (United States)

The Gray Matters Foundation is a 501(c)(3) organization whose mission is to support and empower people impacted by brain tumors through outreach, awareness and assistance program.

Grey Matters (Australia)

A new support group for those living with a benign and low grade brain tumour. Grey Matters is affiliated with Cancer Council Victoria and associated with Melbourne Hospitals (including Royal Melbourne and The Austin).

Headcase (United Kingdom)

Headcase raises funds to provide research to find a cure for the most common and aggressive type of adult brain tumour called a Glioblastoma Multiforme or GBM.

Head for the Cure Foundation (United States)

The Head for the Cure Foundation is a 501(c)3 nonprofit organization dedicated to raising awareness and funding in the fight against brain cancer.

Healing Exchange Brain Trust (United States)

Provides support services for people affected by brain tumors and related conditions.

Help Me Help Others

This is a closed Facebook-based support group which has been active for over four years and which provides support to brain tumour patients and their families and friends.

Hersentumor.nl (The Netherlands)

A patient-oriented organisation in the Netherlands whose aim is to prevent and cure brain tumours.

Hjernesvulstforeningen (Norway)

This is HsF which is associated to the Norwegian Cancer Society.

HjernetumorForeningen

We are an association of patients who have and have had brain tumor, and their relatives. Here you have the opportunity to exchange experiences and get support from others who are in similar situation.

Il Fondo di Gio ONLUS (Italy)

Il Fondo di Gio ONLUS is an Italian brain tumour charity named in honour of Gio, the young son of Francesca Scropetta, who passed away from a brain tumour. Francesca may be contacted at ilfondodigio@alice.it

IRENE Onlus (Italy)

L’associazione IRENE Onlus è stata fondata alcuni anni fa per iniziativa di pazienti e familiari di persone affette da tumori cerebrali. Obiettivo dell’Associazione IRENE è quello di aiutare le persone che hanno ricevuto una diagnosi di tumore cerebrale e i loro familiari, ad affrontare i problemi sia di natura sanitaria che psicologica e sociale che questa diagnosi comporta...

Irish Brain Tumour Support Group

The Irish Brain Tumour Support Group was founded in May 1991 in Dublin by a small group of patients and their families with the objective of providing community-based support to people diagnosed with brain tumours and their families. In April 2002, a second brain tummour support group was launched in Cork City and in 2006 a third one was set up in Galway.

Italia - Glioblastoma Multiforme - cancro al cervello (Italy)

Italian glioblastoma Facebook website.

Jacobs Hope Foundation for Brain tumours and other cancers (Cameroon)

Official Facebook page for the Cameroon-based Foundation that aims to create awareness of brain tumours and other cancers.

Japan Pediatric Brain Tumor Network

The website for the Japan Pediatric Brain Tumor Network is in Japanese.

Jeffrey Thomas Hayden Foundation (United States)

The Jeffrey Thomas Hayden Foundation is a registered non-profit 501c(3) US-based organization dedicated to helping kids affected by cancer.

Joe di Palma Brain Tumor Foundation (Canada)

The Joe Di Palma Brain Tumor & Pediatrics Foundation is dedicated to raising money for charities that are focused on helping adults and children with brain tumors. The Foundation is based in Vaughan, Ontario.

Just One More Day (United States)

Just One More Day is committed to providing information and support for families affected by diffuse intrinsic pontine glioma.

Kartu Lengviau (Lithuania)

The only Internet page and support group for brain tumour patients and their carers in Lithuania.

Katie McKerracher Trust (United Kingdom)

Katie’s Trust wants to help children with a diffuse pontine glioma by supporting patients and parents with finance and advice, providing access to healing/alternative therapy and investigating/supporting research. The Trust also provides some financial assistance to dancers from the Scottish Borders studying dance in higher education.

Kevin J Mullin Memorial Fund for Brain Tumor Research (United States)

The Kevin J. Mullin Memorial Fund for Brain Tumor Research, based in the USA (Lancaster, Ohio), conducts an annual 5 km run/walk from which the proceeds go to brain tumor research.

Kortney Rose Foundation (United States)

The Kortney Rose Foundation is a 501(c)(3) organization that is dedicated to raising funds to support research and education related to the treatment and cure of pediatric brain tumors.

Legacy Brain Foundation (United States)

Our Mission is to support patients with brain or spinal cord tumors in their communities through public awareness, education, grants and services; creating a better quality of life for patients and their families.

Levi's Star (United Kingdom)

Levi’s Star, in memory of Levi Ringer, is a new UK charitable organisation which aims to support children with brain tumours and other serious neurological conditions.

Making Headway (United States)

Making Headway Foundation Inc. is a US (Chappaqua, NY) based not-for-profit organization dedicated to the care, comfort, and cure of children with brain and spinal cord tumors.

Mark Linder Walk for the Mind (United States)

Mark’s goal was to create a place where brain tumor survivors and those still fighting the battle can come and support one another in this battle...Mark founded the Walk for the Mind in 2003. The Walk is a way to unite those individuals and their families as well as to raise funds to support brain tumor research in hopes to find a cure.

mASS Kickers (United States)

mAss Kickers Foundation (MKF) is a 501(c)(3) non-profit organization, which provides support and motivation to all newly-diagnosed patients, family, and friends affected by tumors or cancer. MKF serves this mission through its website, fund-raising, and select events throughout the year. Founded by brain tumor patient Dr Eric Galvez.

Matthew Larson Pediatric Brain Tumor Research Foundation (United States)

The Matthew Larson Pediatric Brain Tumor Research Foundation seeks to raise awareness and funds needed to overcome pediatric brain tumors and to help the children and families affected by them.

Matthew’s Miles (United States)

Our mission is to raise brain tumor awareness in the general public and to raise money for pediatric brain tumor research in hope of finding a cure for this devastating illness.

Meagan's Walk: Creating a Circle of Hope (Canada)

Meagan's Walk, held on Mother's Day, raises awareness about paediatric brain tumours and funds for research. Participants conclude the walk with a circle around SickKids Hospital, Toronto, Canada.

Meningioma Mommas (United States)

Meningioma Mommas is a 24/7 online support group for all those affected by meningioma brain tumors.  The non-profit organization is also committed to raising funds for meningioma specific research.

Meningioma UK (United Kingdom)

The only UK organisation for support and information for patients with meningioma tumours of the brain and spine. Thirty per cent of all primary brain tumours are meningioma tumours.

Brain Injury Alliance of Kentucky (formerly Michael Quinlan Brain Tumor Foundation) (United States)

The Michael Quinlan Brain Tumor Foundation was established to be dedicated to empowering those persons who have been affected by brain tumors. It is now amalgamated with Brain Injury Alliance of Kentucky, which is committed to serving those affected by brain injury though advocacy, education, prevention, outreach, service and support.

Monmouth and Ocean County Brain Tumor Support Group (United States)

The Monmouth and Ocean County Brain Tumor Support Group is a US-based (New Jersey) brain tumor support group.

Musella Foundation (United States)

Virtual Trials.com - Clinical Trials and Noteworthy Treatments for Brain Tumors (United States and web-based). Regarded as one of the most comprehensive brain tumor websites in the English-speaking language.

Naseem's Manx Brain Tumour Charity (United Kingdom)

"Our aim is to support Island residents who are suffering with a brain tumour by way of giving them financial support and providing the latest information about brain tumours."

National Brain Tumor Society (United States)

The National Brain Tumor Society (NBTS) is the largest non-profit organisation dedicated to the brain tumour community in the United States. The NBTS is committed to finding better treatments, and ultimately a cure, for people living with a brain tumour today and anyone who will be diagnosed tomorrow.

Neuro-Oncology Information Network - NOgIN (Australia)

NOgIN is a not-for-profit organisation whose mission is dedicated to reducing the physical and emotional impact associated with the diagnosis and ongoing treatment of patients with a brain tumour. It aims to improve outcomes for patients and their families living in western Sydney.

Newro Foundation (Australia)

The Newro Foundation is a not-for-profit organisation and registered charity seeking to develop new ideas and new research for new hope in the fields of neurology, neurosurgery, spinal surgery and
the neurosciences.

Nick Gonzalez Foundation for Brain Tumor Research (United States)

The Nick Gonzales Foundation for Brain Tumor Research was established in 2007 in honor of Nick, a loving husband, father, son, brother, friend and so much more. The Foundation concentrates on raising public awareness of the early warning signs of brain tumours and it also focuses on supporting brain tumour research.

Oklahoma Brain Tumor Foundation (United States)

OKBTF is dedicated to meeting the needs of Oklahoma families, caregivers and patients affected by primary brain or central nervous system tumors.

Oligocyte Bretagne Ouest (France)

Oligocyte Bretagne Ouest is a charity organisation that raises funds for research into brain tumours. There are two branches of the charity – one in Guérande (near Nantes) and the second one in Quimper (Brittany)

Oscar's Angels (France)

Oscar’s Angels is a non-profit charity that cares and support families with children with brain and spinal tumours and severe neurological problems, in particular during their hospitalisation. We are present in the neurosurgery, neurology, oncology and ICU units.  Oscar's Angels created the first Parent Advocate Program in France (Children’s Hospital of Toulouse) and, with the help of healthcare staff, a new kind of volunteer who is perfectly integrated in the medical teams and shares with them all information necessary to care for the family in the best possible way.

Pediatric Brain Tumor Foundation

The Pediatric Brain Tumor Foundation works to eliminate the challenges of childhood brain tumors.
It is the world’s largest non-governmental source of funding for childhood brain tumor research. The PBTF also provides educational resources and emotional support for brain tumor survivors and their families.

Pediatric Low Grade Astrocytoma Foundation (United States)

The US-based Pediatric Low Grade Astrocytoma Association (PLGA) seeks to raise awareness, funding, and find a cure for this disease.

Philippine Brain Tumor Alliance

We are committed to improving the lives of those affected by brain tumors. Educating and empowering the patients and their families to improve the quality of their lives.

PPR Foundation (United Kingdom)

We are committed to raise £1 million by 2015 to fund Brain Tumour Research. We will support various research projects aimed at possible causes, cures, treatments or effects thereof.

ROC On! Run Over Cancer (United States)

ROC On! (Run Over Cancer) was developed by Laurie Dangler, M.D., brain cancer patient, to organize people to run or walk all or half of the Columbus Marathon and raise funds for research at The Ohio State University's Arthur G. James Cancer Hospital.

San Diego Brain Tumor Foundation (United States)

The San Diego Brain Tumor Foundation (SDBTF) was created to support the brain tumor community in San Diego (USA).

Sontag Foundation (United States)

The Sontag Foundation, a private foundation in the US, seeks to improve the lives of brain tumor patients by funding brain tumor medical research.  Our grants support the work of outstanding early career scientists in the US and Canada. We also assist a brain tumor patient support group  in Jacksonville, Florida.

Southeastern Brain Tumor Foundation (United States)

Established in 1995, the SBTF is devoted to funding a cure for brain tumors.  Located in Atlanta, Georgia, this US based not-for-profit charitable organization provides support and outreach to brain tumor  patients and their families.  For over a decade, the SBTF has supported critical, cutting edge brain tumor research at major medical centers throughout the Southeastern United States.

Spinal Cord Tumour Forum (United Kingdom)

This is a website for people in the UK who have had, or whose lives have been affected by, benign spinal cord tumours.

STOPhersentumoren.nl (The Netherlands)

A Dutch foundation established to raise public awareness and funding for urgently needed brain tumor research to find the cause and cure for brain tumors more quickly.

Students Supporting Brain Tumor Research - SSBTR (United States)

Our mission is to provide education and leadership development to our youth, furnish a platform for them to play a principal role in effecting positive changes in their communities, promote awareness of how common brain tumors are as the leading cause of cancer deaths among their peers and act as outreach to support affected individuals and their families.

Swedish Brain Tumor Association (Svenska hjärntumörföreningen)

The Swedish Brain Tumor Association aims to support patients, relatives and caregivers with information and the opportunity to connect with each other.

Tali's Fund (Canada)

Tali's Fund was set up in remembrance of four-year-old Tal Doron, who died from a brain tumor. The Fund raises money for research projects at SickKids Hospital (Canada) and helps provide emergency funds for families with a child undergoing treatment.

Taylan’s Project (United Kingdom)

Taylan’s Project focuses on funding vital research to improve the quality of life for brain tumour sufferers and to aid the search for better treatments, with better outcomes. We want to raise national awareness of this devastating illness and our ultimate ambition is to find a cure.  We also provide UK holidays for terminally ill children and their families, as well as financial support for those who need it.

Team Billy (United States)

This organisation’s mission is to foster public support of a vision of a world where brain tumors no longer exist as a deadly and debilitating illness. They also fund medical research.

Teenage Cancer Trust (United Kingdom)

The Teenage Cancer Trust (TCT) is a charity dedicated to improving the lives of teenagers and young adults with cancer. They fund and build specialist units for young people in National Health Service hospitals. TCT also provides specialist Nurse Consultants who provide clinical care, develop research, deliver professional education and ensure that standards remain as high as possible.TCT’s top priority is building units in NHS (UK) hospitals specifically for teenagers with cancer.

The Brain Tumour Charity (United Kingdom)

The Brain Tumour Charity is the UK's largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts.

The Cure Starts Now Foundation (United States)

The Cure Starts Now Foundation fights for the cure for children with brainstem glioma and cancer survivors everywhere.

The Tanner Seebaum Foundation (United States)

The Tanner Seebaum Foundation is a US-based (Centennial, Colorado) non-profit organisation that strives to fund medical research that will lead to a cure for this terrible disease and places special emphasis on the treatment of ependymoma and glial tumors of the brain and spine.

 

Tuberous Sclerosis Association (United Kingdom)

The Tuberous Sclerosis Association promotes awareness, research and the best management of tuberous sclerosis complex and supports all affected individuals and families.

Tug McGraw Foundation (United States)

The US-based Tug McGraw Foundation was established to "raise funds for pioneering brain cancer research, increase public awareness of the disease, and support college students who exemplify leadership and Tug’s inspiring 'Ya Gotta Believe' spirit".

United Brain Tumour Support (Australia)

Located on the Gold Coast, Australia. Contact Pete McLaughlin: 0422 784885.

Voices Against Brain Cancer (United States)

Our mission is to find a cure for brain cancer by advancing scientific research, increasing awareness within the medical community and supporting patients, their families and caregivers afflicted with this devastating disease.

Walk for Kate and Blankets for Brains (United States)

Walk for Kate was founded in June 2010 as a nonprofit 501(c)3 corporation dedicated to finding a cure for brain tumors. Our goals include advancing community awareness and raising funds through walking (and running for those more adventurous among us) to further brain tumor research.

Werkgroep Hersentumoren (Belgium)

Werkgroep Hersentumoren vzw - Study Group Brain Tumours Belgium - is a multiprofessional group consisting of patients and their relatives, physicians, caregivers in the broadest sense of the word, neurologists, neurosurgeons, nurses, psychologists, social workers, etc.

WNC BTS (United States)

WNC BTS is a US-based (Asheville, North Carolina) adult support group for brain tumor survivors, their families, and caregivers.

Worcestershire Brain Tumour Support Group (United Kingdom)

The Worcestershire Brain Tumour Support Group (WBTSG) in the UK aims to offer information and support to anyone affected in any way by a brain tumour.

Zimbabwe Brain Tumor Association (Facebook page)

The Zimbabwe Brain Tumor Association (ZBTA) seeks to campaign for widespread knowledge on brain tumors, to improve the quality of life for brain tumor patients and their caregivers in Zimbabwe, through access to better care, improved facilities and treatment. They seek to instil hope and strength through shared knowledge and support. The ZBTA’s motto is: “achieving through hope and strength”.

Last updated 9 December 2017