Carol is a Special IBTA advisor and lives near Chicago, United States.

Carol is the founder and current President and Administrator of the Central Brain Tumor Registry of the United States, or CBTRUS, where she has been working since 1989 to improve the collection and reporting of primary brain tumors through building consensus between the cancer registry community and the brain tumor research and clinical community..

Carol has served on many scientific committees and is a member of several national and international organizations with a focus on brain tumors. She provided valuable historical and statistical information which contributed to the passage of Public Law 107-260 which mandates the collection of nonmalignant brain tumor data by state cancer registries in the United States receiving funding from the Centers for Disease Control and Prevention National Program of Cancer Registries.

She is a member of the North American Association of Central Cancer Registries Committee on Data Assessment and the National Cancer Institute’s Surveillance, Epidemiology and End Results Committee for Multiple Primaries Rules for Non-Malignant and Malignant Central Nervous System Tumors. Carol also serves on the Advisory Board of the Brain Tumor Epidemiology Consortium, an international organization of researchers interested in furthering collaborations in population science.

Carol received the Golden Wings Award from the Midwest Children’s Brain Tumor Center in 1999 and the NCI, SEER Leadership Award in 2003 for the many manuscripts she has co-authored on brain tumor registration and classification.