Jenny is an IBTA Senior Advisor and lives in Amersham, Buckinghamshire, United Kingdom.

The loss of her elder son, Stephen, aged 24, to a glioblastoma in October 2004, was the reason behind Jenny’s application and appointment in March 2006 as Chief Executive of Brain Tumour UK. Over the next six years Jenny turned the organisation around from a small charity in deficit to what it had become by her retirement at the end of 2012 – a respected, needs-led, professional and fast - growing not-for-profit with an annual turnover of £2.4 million, an active helpline for patients and carers handling 3,000 calls/ emails per annum and a growing network of 27 patient groups across the UK.

Previously, Jenny spent her career in senior voluntary sector roles, notably with the National Trust for Buildings of Historic Interest and Places of Natural Beauty, and for the last 14 years as its national lead on community development and volunteering, diversity and outreach. Jenny has wide-ranging interests in health, heritage and environmental issues and has served on many national government and advisory committees and in non-executive director/trustee capacities for various national and local charities. All these have brought valuable insights of the services provided by national, regional and local voluntary and community groups and a passion for the difference their efforts can make to peoples’ lives and wellbeing.

Jenny was awarded the Order of the British Empire (OBE) in 2006 in recognition of her services to the heritage, volunteering and community and is a Fellow of the Royal Society of Arts, UK.

Jenny is now a national committee member of Healthwatch England, the statutory champion for people accessing any aspect of health or social care services and locally Chair of Healthwatch Bucks.