IBTA World Summit 2017 Download Page
This is the download page for the IBTA World Summit of Brain Tumour Patient Advocates 2017 (19th–22nd October 2017) in London, UK, which includes presentation slides from the plenary sessions and masterclasses. Also on this page is the programme for the Sub-Saharan Africa Neuro-Oncology Collaborative (S-SANOC) Planning Meeting (18th–19th October 2017). Please note: these files are to be used as a personal educational resource only and must not be distributed without express permission of the presentation’s author.
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Programmes
- Sub-Saharan Africa Neuro-Oncology Collaborative (S-SANOC) Planning Meeting Programme (pdf)
- Third Biennial World Summit of Brain Tumour Patient Advocates Programme (pdf)
Presentations
20th October
- State of the Art: Brain Tumour Surgical Treatments – Gelareh Zadeh. Warning: contains images of surgical procedures which some may find upsetting
- State of the Art: Radiation Treatments – Normand Laperriere
- State of the Art: Chemotherapy, Immunotherapy, Devices, etc – Mark Gilbert
- Let’s talk about… Adult brain tumours: early, accurate diagnosis is key – Sarah Lindsell
- Let’s talk about… Brain Tumours in the Czech Republic – Hariz Hassan
- Let’s talk about… Brain Tumours in Mexico – Alexandra Diaz-Alba
- Let’s talk about… Brain tumours in Ghana – Teddy Totimeh (no slides)
- Summary of the Sub-Saharan Africa Neuro-Oncology Collaborative (S-SANOC) meeting on 19th October – Kathy Oliver
- Helping Patients and Families be their own Best Advocate in their Care – Terri Armstrong
- Understanding the Role of the Regulator – Elias Pean
- Masterclass A: What’s new in Clinical Trial Design? – Normand Laperriere (coming soon)
- Masterclass B: The Challenge of Missing Data – Jeff Sloan and Madeline Pe
21st October
- The WHO Classification of Brain and CNS Tumours – Rakesh Jalali
- Pediatric Neuro-oncology: Where are we Today with Treatment? Where should we go Tomorrow? – Rakesh Jalali
- Masterclass C: Sustainable Brain Tumour Care Reducing Inefficiencies and Waste in our Health Care Systems (All.Can pilot module) – Suzanne Wait and Shannon Boldon
- Masterclass D: Rare CNS Tumour Program: Implementation of the Cancer Moonshot Rare Tumor Patient Engagement Network – Mark Gilbert and Terri Armstrong
- Let’s talk about… Campaigning through Petitions and other Parliamentary Processes in the UK – Hugh Adams
- Let’s talk about… The PBTF Imaginary Friends Society – Robin Boettcher
- Let’s talk about… Brain tumours in the Cayman Islands – Brenda Archer (no slides)
- Let’s talk about… Challenges in Serving a Geographically-Dispersed Brain Tumour Community in Australia (includes notes) – Catherine Hindson
- Plenary Discussion: The Brain Tumour Patients’ Charter of Rights – Next Steps – Barry Littlefield and Kristina Knight
- One Man’s Surprising Journey: From Brain Tumour Diagnosis to Biscuit Dunking – Stuart Farrimond (associated video can be viewed here)

