ATTENDING CONFERENCES

Since its establishment in 2005, the IBTA has given over 50 presentations at a wide range of scientific conferences and meetings.

Invited Speaker

  • University of L’Aquila brain tumour conference, L’Aquila, Italy, January 2006. (plenary speaker)
  • Brain Tumour UK/Samantha Dickson Brain Tumour Trust national brain tumour conference in Nottingham, UK, July 2006 (plenary speaker)
  • Perspectives in Central Nervous System Malignancies (PCNSM 3) conference, Warsaw, Poland, March 2007 (symposium speaker, exhibitor)
  • ECCO 14 (European CanCer Organisation) conference, Barcelona, Spain, September 2007 (plenary speaker in the patient advocacy stream)
  • Brain Tumour UK conference, Nottingham, UK, July 2007 (plenary speaker)
  • Society for Neuro Oncology (SNO) Conference, Dallas, Texas, USA, November 2007 (after-dinner speaker)
  • Hammer Out Brain Tumours Conference, Budleigh Salterton, UK, March 2008 (plenary speaker)
  • European Cancer Patient Coalition (ECPC) Summit, Brussels, Belgium March 2008 (plenary speaker, exhibitor)
  • 2nd Parliamentary Summit on Rarer Cancers, London, UK, June 2008 (plenary speaker)
  • Brain Tumour UK, Birmingham, UK, July 2008 (plenary speaker, exhibitor)
  • European Association for Neuro-Oncology (EANO) Conference, Barcelona, Spain, September 2008 (session speaker, exhibitor)
  • Association of Neuro-Oncology Nurses (ANON) Conference, Birmingham, UK, December 2008 (speaker)
  • ECCO 15/ESMO 34 (European CanCer Organisation and European Society of Medical Oncology Joint Conference), Berlin, Germany, September 2009 (plenary speaker at patient advocacy track)
  • European Platform for Patients’ Organisations, Science and Industry (EPPOSI) 10th Workshop on Partnering for Rare Disease Therapy Development, Federal Parliament, Brussels, Belgium, October 2009 (plenary speaker)
  • British Neuro Oncology Society (BNOS) Conference, Hull, UK, June 2009 (session speaker, conference dinner speaker)
  • Britain Against Cancer, London, UK, December 2009 (breakaway session speaker)
  • Genesis 2009, London, UK December 2009 (plenary speaker)
  • MSc Masters in Oncology course, Institute of Cancer Research, lecture on the brain tumour patient and caregiver perspective delivered to oncology Registrars, London, UK, May 2010
  • European Organisation for Treatment and Research into Cancer (EORTC), conference on The Future of Academic Clinical Trials, Brussels, Belgium September 2010 (plenary speaker)
  • Oncology Centre Antwerp Roundtable – Treatment and Support of Brain Tumour Patients and their Families, Brussels, Belgium, September 2010 (plenary speaker)
  • European Society for Medical Oncology (ESMO), The Battle Against Rare Cancers press conference, Milan, Italy, October 2010 (plenary speaker)
  • Belgian Association for Neuro Oncology (BANO) annual conference, Brussels, Belgium, November 2010 (plenary speaker)
  • Britain Against Cancer Conference, London, UK, December 2010 (session speaker)
  • European Cancer Patient Coalition FACE (Forum Against Cancer Europe) workshop on rare cancers at the European Parliament, Brussels, Belgium, January 2011 (plenary speaker)
  • EORTC Groups Annual Meeting – EGAM 2011, Brussels, Belgium, March 2011 (plenary roundtable discussant)
  • Mansell Bequest Symposium, London, UK, May 2011 (plenary speaker)
  • British Neuro-Oncology Society (BNOS), Cambridge, UK, June 2011 (education day plenary speaker)
  • European Multidisciplinary Cancer Congress, Co-Chair and plenary speaker at the Patient Track session on rare cancers, and panellist for the Oncopolicy Forum session on “Inequalities in Access to Cancer Drugs in Europe” Stockholm, Sweden, September 2011
  • Cyprus Brain Tumour Association conference, Nicosia, Cyprus, November 2011 (plenary speaker)
  • European Cancer Patient Coalition (ECPC) and European Organisation for Rare Diseases (EURORDIS) joint workshop in the European Parliament on Registries for Rare Disease and Rare Cancer Patients, Brussels, Belgium, January 2012 (plenary speaker)
  • European Society for Medical Oncology (ESMO)/Rare Cancers Europe (RCE) conference on “Improving the methodology of clinical research on rare cancers”, Brussels, Belgium, February 2012 (Session Co-Chair)
  • Austrian Society of NeuroOncology conference, Graz, Austria, March 2012 (session speaker)
  • Hammer Out brain tumour patient conference, Cheltenham, UK, March 2012 (plenary speaker)
  • Hjernevulstforeningen (Norwegian Brain Tumour Association/NBTA) annual conference, Sandefjord, Norway, April 2012 (plenary speaker)
  • European Medicines Agency (EMA), Oncology WP Health Related Quality of Life (HRQoL) Workshop, London, UK, May 2012 (workshop speaker)
  • European Cancer Patient Coalition (ECPC) conference, Rieti, Italy, June 2012 (plenary session Chair)
  • European Association of Neuro Oncology (EANO) annual meeting, Marseille, France, September 2012 (plenary speaker in neuro oncology nurses’ session)
  • European Organisation for Research and Treatment of Cancer (EORTC) – the first one day course for patient advocates on clinical trials, Brussels, Belgium, September 2012 (speaker)
  • European Society for Medical Oncology (ESMO), Vienna, Austria, September 2012 (session speaker on rare cancers)
  • Brain Tumour Ireland Launch, Dublin, Ireland, November 2012 (plenary speaker)
  • Biotherapy Development Association (BDA), Innsbruck, Austria, March 2013 (plenary speaker)
  • British Neuroscience Association (BNA) Festival of Neuroscience, London, UK, April 2013 (session speaker)
  • International Kidney Cancer Coalition (IKCC), Windsor, UK, April 2013 (plenary speaker)
  • Romanian National Conference of Neuro-Oncology, Cluj-Napoca, Romania, April 2013 (plenary speaker)
  • EORTC (European Organisation for Research and Treatment of Cancer) Third Annual Brain Metastases Research and Emerging Therapy Conference, Marseille, France, September 2013
  • European Cancer Congress, Amsterdam, The Netherlands, September 2012 (session speaker, Co-chair and Chair), September 2013
  • 5th International Conference on Future Trends in the Treatment of Brain Tumours (plenary speaker), Bologna, Italy, November 2013
  • Biotherapy Development Association (BDA) Workshop on Access to Innovative Oncology Medicines in Europe (plenary speaker), Bonn, Germany, January 2014
  • European Organisation for Research and Treatment of Cancer (EORTC) First Cancer Survivorship Summit (plenary speaker), Brussels, January 2014
  • University of Portsmouth: Focus on Health event (plenary speaker), Portsmouth, UK, February 2014
  • HTAi Conference (symposium speaker), Washington DC, USA, June 2014
  • Italian Glioblastoma Network/IGN CME course (plenary speaker), Milan, Italy, June 2014
  • 26th European Congress of Pathology (session speaker), London, UK, August 2014
  • National Cancer Research Institute (NCRI) Annual Conference, Liverpool, UK
  • European Brain Council (EBC) Symposium, Sofia, Bulgaria, November 2014
  • Rare Adult Brain Tumours Conference, Bologna, Italy, November 2014

Examples of presentation topics

  • The brain tumour patient: what is important for the journey?
  • The First Documented, Modern-Day Brain Tumour Surgery for a Glioma (to commemorate the 125th anniversary of Rickman John Godlee’s landmark operation)
  • A globe, a shoe, a brick wall or two, collaboration, cooperation and hope – challenges for the brain tumour journey
  • Now NICED! But what next?
  • Challenges of fundraising for and awareness-raising of brain tumours
  • Overview of the patient journey and challenges faced: the good, the bad and the ugly
  • Walking around the world for brain tumours: an advocate’s guide to raising awareness of a rare cancer
  • Campaigning for improved brain tumour outcomes in Europe: the IBTA experience
  • Glioblastoma: the patient perspective of a devastating disease
  • The Battle Against Rare Cancers in Europe
  • HTA and access to promising, new therapies for patients with rare cancers
  • Brain tumours: hope for the future and promising areas of research
  • Orphans for Adoption: NICE and the commissioning process for orphan cancer medicines
  • Eyjafjallajökull isn’t the only volcanic activity in Europe: patient advocacy groups and initiatives meet the challenges of rare cancers
  • International collaboration on the brain tumour journey
  • Treating patients as individuals
  • Four million reasons why we need to improve the rare cancer journey
  • Hope for the future: alliances and promising areas of research
  • The five second bombshell: challenges for the brain tumour patient and caregiver
  • The patient perspective on clinical trials: recruitment, rights and ethical issues
  • Allies in the fight against brain tumours
  • Why are patient registries required for rare diseases?
  • Health related quality of life: a patient and caregiver perspective
  • The role and support of caregivers – we also ride the brain tumour rollercoaster
  • Adequacy of patient information in clinical trials: at the crossroads of opinions
  • Rare Cancers 101
  • European Patient Advocacy: adapting to an ever-changing healthcare environment
  • Current and Future Challenges of Targeted Therapy in HTA Evaluation
  • Perspectives from an international cancer patient coalition
  • Brain Metastases – a patient advocacy perspective
  • This week on talking about cancer with Richard Sullivan – a mock TV chat show
  • The Critical Goal: faster access to innovative drugs – a patient advocacy perspective
  • Making the vision for personalised medicine a reality at EU level (roundtable speaker)
  • The effects of a brain tumour on the patient and family
  • Approaches to accelerating patient access to medicines in oncology
  • Pathology and public engagement: the patient perspective
  • Searching for a safety net on the brain tumour rollercoaster: the caregiver and family perspective