The IBTA and COVID-19


The IBTA has compiled an international list of COVID-19 resources for brain tumour patients and caregivers and an international survey in seven languages on how COVID-19 is affecting our community.


 
 

Ushering in a 'New Dawn' in sub-Saharan Africa

The IBTA are proud to support the newly-formed Society for Neuro-Oncology Sub-Saharan Africa (SNOSSA) and the inaugural SNOSSA meeting, held in Abuja, Nigeria.

Click to find out more.

 

Policy Work

The IBTA engages in policy work to improve outcomes both in the brain tumour field and the world of rare cancers. We work to represent the interests of people affected by brain tumours in a wide variety of international forums.

 

Our alliance

The IBTA brings together over 100 organisations and charities from around the globe. Many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access.

We are led by people with first-hand experience of living with a brain tumour. By working together with other organisations and initiatives we can achieve more.

 

Collaborations

The IBTA is proud to work closely with a range of high level initiatives around the world. One example is our work with the European CanCer Organisation (ECCO).

We recently had the honour of attending a meeting with the European Commissioner for Health and Food Safety, Stella Kyriakides (second from left) and the ECCO President (Dr Matti Aapro, third from left) and ECCO CEO (Mike Morrissey, far right). IBTA Chair Kathy Oliver is pictured far left.

 

The IBTA Brain Tumour Magazine

Our annual magazine is sent for free to recipients in 111 countries and widely distributed at international neuro-oncology and cancer conferences. It includes interviews with healthcare professionals, patients, caregivers and advocates, information on new treatments and other news from our international brain tumour community.

 

Raising awareness

It is extremely important to raise awareness of brain tumours, which are rare diseases. We actively encourage awareness-raising and fundraising activities around the world. The IBTA established the International Brain Tumour Awareness Week, and the Walk around the World for Brain Tumours, now in their 11th year

Click this image to find out more about how to get involved and how to register or report your activity.

 

Events and Conferences

The IBTA is pleased to list on its website the various conferences and meetings for the neuro-oncology scientific and patient communities.

We also organise the biennial World Summit of Brain Tumour Patient Advocates – a unique opportunity for advocates and stakeholders from around the world to exchange ideas on best practice, challenges and advocacy experiences; and build new relationships between organisations and individuals in the brain tumour advocacy field.

 

Advocacy

We are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist.

 

Walking around the world

The annual IBTA initiative, Walk Around the World for Brain Tumours, encourages people to take part in sponsored or unsponsored walks to raise awareness of brain tumours. Miles walked are symbolically ‘donated’ to the target of circling the Earth at the equator (24,901 miles or 40,075 kms)!

Click this image to find out more about how to get involved and view previous years' walks.

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ADVOCACY, AWARENESS-RAISING AND INFORMATION

⚠ COVID-19 INFORMATION FOR THE INTERNATIONAL BRAIN TUMOUR COMMUNITY: CLICK HERE

INTERNATIONAL BRAIN TUMOUR AWARENESS WEEK

 (Saturday, 24th October to Saturday, 31st October inclusive)

The International Brain Tumour Alliance (IBTA) is a unique global network for brain tumour patient and carer groups around the world. We work alongside, and represent, members of our community - including researchers, scientists, clinicians, nurses and allied healthcare professionals - to engage in advocacy, to raise awareness and to share information.

IN THE SPOTLIGHT - LATEST ARTICLES AND NEWS

What is International Brain Tumour Awareness Week?

| IBTA News | No Comments
IBTA's Kathy Oliver explains the International Brain Tumour Awareness Week, why it matters and how we can all get involved at this special time

IBTA e-News October 2020 out now

| IBTA News | No Comments
The IBTA's monthly e-News has now been released and been emailed to all subscribers. Highlights from this issue include the announcement of this year's International Brain Tumour Awareness Week and…

Launch of the European Code of Cancer Practice

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On 23rd September, the European Cancer Organisation launched the European Code of Cancer Practice in the virtual presence of EU Commissioner for Health and Food Safety Stella Kyriakides. The Code is a citizen and…

IBTA COVID-19 Survey published in Neuro-Oncology Advances

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The IBTA announces that the results of the IBTA's survey: 'Brain tumours and COVID-19: the patient and caregiver experience' have been published in the journal Neuro-Oncology Advances. In April and…

Advocacy Organizations and Professional Societies from Across the Globe Unite on Brain Tumour Patients’ Charter of Rights

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Seventy-five organizations from around the world have endorsed the new Brain Tumour Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed…

Third Annual Conference of the Society for Neuro-Oncology Sub-Sahara Africa will be virtual

| IBTA News, SNOSSA | No Comments
SNOSSA (the Society for Neuro-Oncology Sub-Saharan Africa) has announced that their annual conference will take place virtually as a series of two webinars on Saturday, 22nd August and Sunday, 23rd…

The IBTA supports major regulatory science report launched by Birmingham Health Partners

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We at the IBTA are proud and delighted to have had the opportunity to contribute to this new report, entitled Advancing Regulatory Science and Innovation in Healthcare, which has been…

IBTA joins Global Cancer Coalitions and Alliances to issue COVID-19 statement

| IBTA News | No Comments
The IBTA alongside Advanced Breast Cancer Global Alliance, International Kidney Cancer Coalition, Global Lung Cancer Coalition, Lymphoma Coalition, Global Colon Cancer Association, World Bladder Cancer Patient Coalition and World Ovarian…

IBTA Magazine 2019-20

The 2019/2020 World Edition of Brain Tumour magazine is now available! Request a free copy here or read it
online now.

We are proud to support The Brain Tumour Patients' Charter of Rights
Read it online here.

S-SANOC Report

Report of the Sub-Saharan Africa Neuro-Oncology Collaborative (S-SANOC) Meeting, London.
Read it online now.

OUR ALLIANCE

The IBTA Alliance

Click on the map above to find out more about the IBTA alliance

The IBTA is a proud associate partner of EURACAN, the European Reference Network (ERN) for rare adult solid tumours which includes a subgroup for brain tumours.

Please click here for more information about EURACAN.

What we do

Advocacy

We collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world.
Find out more

Awareness-raising

We strive for wider public recognition of the unique challenges patients with this devastating disease and their families face.
Find out more

Information

We publish a monthly e-News with items of interest to the international brain tumour community. We also publish a major annual magazine called Brain Tumour which is sent for free to recipients in 110 countries.
Subscribe to Brain Tumour magazine and IBTA e-News

Events and conferences

We maintain a constantly updated list of major regional, national and international neuro-oncology conferences and other meetings relevant to brain tumours.
Find out more

Clinical trials

We maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial.
Find out more

Ways you can support us

We would love to hear from you if you'd like to join our Alliance, help promote the IBTA, become a corporate sponsor, learn more about an awareness-raising event or make a donation.
Find out more

THE IBTA IS GRATEFUL TO ALL THOSE WHO HAVE DONATED IN-KIND, PRO BONO AND FUNDING ASSISTANCE OVER THE YEARS, INCLUDING GRANTS FROM THE FOLLOWING COMPANIES AND FOUNDATIONS:

The IBTA welcomes donations from individuals in support of its important work around the world.  For further information, please click here. For more information on corporate sponsorship, click here.