The IBTA brings together over 100 organisations and charities from around the globe. Many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access.
We are led by people with first-hand experience of living with a brain tumour. By working together with other organisations and initiatives we can achieve more.
Raising Awareness 2016-17
Our international community of brain tumour organisations and individuals take part in events and walks year-round to raise global brain tumour awareness.
Click this image to see highlights of just some of the accomplishments in 2016 and the first six months of 2017.
The IBTA engages in policy work to improve outcomes both in the brain tumour field and the world of rare cancers. We work to represent the interests of people affected by brain tumours in a wide variety of international forums.
The IBTA Brain Tumour Magazine
Our annual magazine is sent for free to recipients in 113 countries and widely distributed at international neuro-oncology and cancer conferences. It includes interviews with healthcare professionals, patients, caregivers and advocates, information on new treatments and other news from our international brain tumour community.
It is extremely important to raise awareness of brain tumours, which are rare diseases. We actively encourage awareness-raising and fundraising activities around the world. The IBTA established the International Brain Tumour Awareness Week, and the Walk around the World for Brain Tumours, now in their 10th year
Click this image to find out more about how to get involved and how to register or report your activity.
Events and Conferences
The IBTA is pleased to list on its website the various conferences and meetings for the neuro-oncology scientific and patient communities.
We also organise the biennial World Summit of Brain Tumour Patient Advocates – a unique opportunity for advocates and stakeholders from around the world to exchange ideas on best practice, challenges and advocacy experiences; and build new relationships between organisations and individuals in the brain tumour advocacy field.
We are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist.
Walking around the world
The annual IBTA initiative, Walk Around the World for Brain Tumours, encourages people to take part in sponsored or unsponsored walks to raise awareness of brain tumours. Miles walked are symbolically ‘donated’ to the target of circling the Earth at the equator (24,901 miles or 40,075 kms)!
Click this image to find out more about how to get involved and view previous years' walks.
ADVOCACY, AWARENESS-RAISING AND INFORMATION
IN THE SPOTLIGHT - LATEST ARTICLES AND NEWS
[30th November 2017] The IBTA’s monthly e-News has now been released and has been emailed to all subscribers. Some of the highlights from the October issue include a round-up of highlights from the Annual Meeting of the Society for Neuro-Oncology (16-19 November), which took place in San Francisco, California…
[20th November 2017] IBTA co-director Kathy Oliver has co-authored a recent article published in the journal Health Expectations which argues that ‘value frameworks’ used to inform treatment decisions should focus on the outcomes that matter most to patients…
[30th October 2017] The IBTA’s monthly e-News has now been released and has been emailed to all subscribers. Some of the highlights from the October issue include Australian Brain Cancer Mission to receive AUD $50 million over the next 10 years, research showing a link between HIV infection and meningioma…
What we do
We collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world.
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We publish a monthly e-News with items of interest to the international brain tumour community. We also publish a major annual magazine called Brain Tumour which is sent for free to recipients in 110 countries.
Subscribe to Brain Tumour magazine and IBTA e-News
We maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial.
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Ways you can support us
We would love to hear from you if you'd like to join our Alliance, help promote the IBTA, become a corporate sponsor, learn more about an awareness-raising event or make a donation.
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