Ushering in a 'New Dawn' in sub-Saharan Africa

The IBTA are proud to support the newly-formed Society for Neuro-Oncology Sub-Saharan Africa (SNOSSA) and the inaugural SNOSSA meeting, held in Abuja, Nigeria.

Click to find out more.

 

Raising Awareness

Our international community of brain tumour organisations and individuals take part in events and walks year-round to raise global brain tumour awareness.

Click this image to see highlights of just some of the awareness-raising accomplishments around the world.

 

Policy Work

The IBTA engages in policy work to improve outcomes both in the brain tumour field and the world of rare cancers. We work to represent the interests of people affected by brain tumours in a wide variety of international forums.

 

Our alliance

The IBTA brings together over 100 organisations and charities from around the globe. Many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access.

We are led by people with first-hand experience of living with a brain tumour. By working together with other organisations and initiatives we can achieve more.

 

The IBTA Brain Tumour Magazine

Our annual magazine is sent for free to recipients in 113 countries and widely distributed at international neuro-oncology and cancer conferences. It includes interviews with healthcare professionals, patients, caregivers and advocates, information on new treatments and other news from our international brain tumour community.

 

Raising awareness

It is extremely important to raise awareness of brain tumours, which are rare diseases. We actively encourage awareness-raising and fundraising activities around the world. The IBTA established the International Brain Tumour Awareness Week, and the Walk around the World for Brain Tumours, now in their 11th year

Click this image to find out more about how to get involved and how to register or report your activity.

 

Events and Conferences

The IBTA is pleased to list on its website the various conferences and meetings for the neuro-oncology scientific and patient communities.

We also organise the biennial World Summit of Brain Tumour Patient Advocates – a unique opportunity for advocates and stakeholders from around the world to exchange ideas on best practice, challenges and advocacy experiences; and build new relationships between organisations and individuals in the brain tumour advocacy field.

 

Advocacy

We are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist.

 

Walking around the world

The annual IBTA initiative, Walk Around the World for Brain Tumours, encourages people to take part in sponsored or unsponsored walks to raise awareness of brain tumours. Miles walked are symbolically ‘donated’ to the target of circling the Earth at the equator (24,901 miles or 40,075 kms)!

Click this image to find out more about how to get involved and view previous years' walks.

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ADVOCACY, AWARENESS-RAISING AND INFORMATION

The International Brain Tumour Alliance (IBTA) is a unique global network for brain tumour patient and carer groups around the world. We work alongside, and represent, members of our community - including researchers, scientists, clinicians, nurses and allied healthcare professionals - to engage in advocacy, to raise awareness and to share information.

IN THE SPOTLIGHT - LATEST ARTICLES AND NEWS

IBTA e-News November 2018 released

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The IBTA's monthly e-News has now been released and been emailed to all subscribers. Some of the highlights from this month include the publication of a major report from the…

The 2018 European Health Award goes to Leading Cancer Team

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2018 European Health Award ceremony. (Source: Queen's University Belfast.) An Award that honours projects that help to tackle some of Europe’s most pressing health challenges has been presented to the…

The public health specialist’s perspective: Society for Neuro-Oncology Sub-Saharan Africa inaugural meeting

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In the third in our series about the first formal meeting of the newly-formed Society for Neuro-Oncology Sub-Saharan Africa (SNOSSA), held in Abuja, Nigeria on 22-23 July, 2018, Ngong Jasino Tabali…

A Patient Advocate’s perspective: Society for Neuro-Oncology Sub-Saharan Africa inaugural meeting

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In the second in our series about the first formal meeting of the newly-formed Society for Neuro-Oncology Sub-Saharan Africa (SNOSSA), held in Abuja, Nigeria on 22-23 July, 2018, nurse and brain…

The President’s perspective: Society for Neuro-Oncology Sub-Saharan Africa inaugural meeting

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In the first in a series about neuro-oncology in sub-Saharan Africa, Dr James Balogun, president of SNOSSA, gives his reflections on the new society’s first formal meeting. Dr James Balogun,…

Ushering a “New Dawn” in brain tumour collaboration in Sub-Saharan Africa

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We are delighted to announce the recently formed Society for Neuro-Oncology Sub-Saharan Africa (SNOSSA) will be holding their inaugural conference, entitled "A New Dawn for NeuroOncology in Sub-Saharan Africa", on 22nd…

The IBTA is Proud to Partner with NCI-CONNECT

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The IBTA is excited to announce its participation in a new program at the National Cancer Institute, Center for Cancer Research, Neuro-Oncology Branch called NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare…

2018/19 Edition of the IBTA’s “Brain Tumour” magazine now online!

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Copies of the 2018/19 world edition of our "Brain Tumour" magazine have been landing in the letterboxes of subscribers in over 110 countries across the globe, free of charge.

IBTA Magazine 2018-19

The 2018/2019 World Edition of Brain Tumour magazine is now available! Request a free copy here or read it
online now.

Report on the Third World Summit of Brain Tumour Patient Advocates 2017, London.
Read it online now.

S-SANOC Report

Report of the Sub-Saharan Africa Neuro-Oncology Collaborative (S-SANOC) Meeting, London.
Read it online now.

OUR ALLIANCE

The IBTA Alliance

Click on the map above to find out more about the IBTA alliance

What we do

Advocacy

We collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world.
Find out more

Awareness-raising

We strive for wider public recognition of the unique challenges patients with this devastating disease and their families face.
Find out more

Information

We publish a monthly e-News with items of interest to the international brain tumour community. We also publish a major annual magazine called Brain Tumour which is sent for free to recipients in 110 countries.
Subscribe to Brain Tumour magazine and IBTA e-News

Events and conferences

We maintain a constantly updated list of major regional, national and international neuro-oncology conferences and other meetings relevant to brain tumours.
Find out more

Clinical trials

We maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial.
Find out more

Ways you can support us

We would love to hear from you if you'd like to join our Alliance, help promote the IBTA, become a corporate sponsor, learn more about an awareness-raising event or make a donation.
Find out more

THE IBTA IS GRATEFUL TO ALL THOSE WHO HAVE DONATED IN-KIND, PRO BONO AND FUNDING ASSISTANCE OVER THE YEARS, INCLUDING GRANTS FROM THE FOLLOWING COMPANIES AND FOUNDATIONS:

The IBTA welcomes donations from individuals in support of its important work around the world.  For further information, please click here. For more information on corporate sponsorship, click here.