[1 September 2020] The IBTA’s monthly e-News has now been released and been emailed to all subscribers. Highlights from this issue include research suggesting that prostate cancer drugs may help treat a subset of glioblastoma patients, metformin may speed recovery of children after brain tumour radiotherapy…
Seventy-five organizations from around the world have endorsed the new Brain Tumour Patients’ Charter of Rights, a document intended to help initiate positive change in the care of people diagnosed with brain and central nervous system tumours. The Charter provides a framework for the reduction of inequalities in care and the achievement of policy objectives aimed at improving healthcare systems and communications. It can also be used by individual patients to underpin particular aspects of their care. Ultimately, the goal of The Brain Tumour Patients’ Charter of Rights is to achieve the best possible health and quality of life for adults, children and adolescents living with brain tumors by encouraging and supporting quality standards, policies, and practices
SNOSSA (the Society for Neuro-Oncology Sub-Saharan Africa) has announced that their annual conference will take place virtually as a series of two webinars on Saturday, 22nd August and Sunday, 23rd August 2020. Admission will be free. The events start at 13:00 UTC/GMT (15:00 CAT) on these two days.
This will be the third annual meeting of SNOSSA, a society that was formed to improve the outcomes of patients with brain tumours in the sub-Saharan Africa region, and to give them hope. The meeting will offer education on brain/spinal cord tumours, collaboration among participants, interaction between clinicians and patient advocates, and development of a blueprint to foster better care for patients with brain and spinal cord tumours in the region.
The multidisciplinary scientific programme includes a range of eminent local and international speakers, covering topics such as the impact of COVID-19 on brain tumour care in sub-Saharan Africa; epidemiology of brain tumours in Africa; a tumour board and discussion on medulloblastoma; palliative care; the question of tumour banking in Africa and many more topics of interest.
From the patient advocacy perspective, Irene Ngong (the founder of Jacob’s Hope Foundation, a brain tumour patient organisation in Cameroon) will speak on “The Advocacy Playbook: Keeping Motivated and Impactful” and the IBTA’s Kathy Oliver will be speaking on the newly published Brain Tumour Patients’ Charter of Rights and its application in sub-Saharan Africa.
For further details of the programme and to register for the event, please email Dr Teddy Totimeh at firstname.lastname@example.org, stating your name, discipline, institution, city and country.
We at the IBTA are proud and delighted to have had the opportunity to contribute to this new report, entitled Advancing Regulatory Science and Innovation in Healthcare, which has been launched by the Birmingham Health Partners (BHP) Centre for Regulatory Science and Innovation in the UK.
[1 August 2020] The IBTA’s monthly e-News has now been released and been emailed to all subscribers. Highlights from this issue include research suggesting that a new class of drug, PAR glycohydrolase (PARG) inhibitors, may be effective for gliomas that carry the IDH mutation.