PRIVACY STATEMENT

The International Brain Tumour Alliance (IBTA) is a not-for-profit, limited liability company registered in England and Wales.

This policy applies to information collected on this website.

We are the Data Controller of personal information that this policy applies to under the Data Protection Act 1998.

General Data Protection Regulation (GDPR) legislation

The International Brain Tumour Alliance (IBTA) holds your contact details for one or more of the following reasons:

  • you have made an enquiry of the IBTA
  • you have attended one or more of our events
  • you have asked us to add you to our mailing list so that you can receive our monthly IBTA e-News and our annual IBTA magazine, Brain Tumour

We would like to keep in touch with you regarding our e-News and magazine. If you do not wish to be contacted, please let us know at info@theibta.org.

We only collect information about you that:

  • helps us make the site work better for you
  • lets us contact you if we need to
  • lets us give you accurate local information if you need it
  • shows us how you are using the site, so we can keep improving it
  • helps us understand why you support our work, so we can better
    meet your needs
  • Parts of the site may ask you for more information so that you can
    use services or complete transactions. You’ll always be told when this information is being collected. In many cases you’ll be asked to enter it – for example, an email address for correspondence. This information will only be used for the purposes stated.

The information we collect

We collect the following information from people visiting the website:

  • Questions, queries and feedback you leave, including your email address if you send us email
  • Your IP address and which web browser (and version) you use
  • Information on how people use the site, using cookies and page tagging, to help us improve the website  and our services
  • If you send us feedback, your message will be kept

What are cookies?

Like most websites, our site uses small data files stored on your computer called cookies. Please read our cookies policy, which explains the types of information we collect through the use of cookies and how you can manage their use.

How we store your personal data

All information you provide to us is stored on secure servers. Payment transactions are encrypted.

The transmission of information over the Internet is never completely secure. We’ll do our best to protect your personal data, but cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. We use strict procedures and security features to try to prevent unauthorised access.

How we use your information

Any information we collect is used to:

  • improve the content and design of the website
  • let you use interactive features, when you choose to do so
  • contact you, with your permission

We never share your information with other organisations or third parties for marketing, market research or commercial purposes, and we don’t pass on your personal information to any other website.

Use of postal addresses and phone numbers

If you enter your postal address or phone number into any of our online forms, we may use these details to contact you, unless you ask us not to. If you have given us your postal address or phone number and would prefer not to be contacted by these means, please email info@theibta.org.

Disclosure of your information

We may disclose your personal information:

  • if we are under a duty to disclose or share visitors’ personal data to comply with a legal obligation
  • for law enforcement purposes
  • to apply our terms of use and other agreements

Visitors’ rights

Under the Data Protection Act you have the right to:

  • ask us not to process your personal data
  • see information we hold about you
  • ask for inaccurate personal data to be corrected

For a copy of the personal information we hold about you, please email info@theibta.org or write to The Chair, International Brain Tumour Alliance, PO Box 244, Tadworth, Surrey, T20 5WQ, United Kingdom. When we are satisfied as to your bona fide identity we will send you a copy of your personal information that we are legally required to disclose. We may ask you to pay a fee for this service to cover administration and postage if applicable.

Please contact us at the same address if you believe that information we hold about you is inaccurate and want it to be corrected.

Links to and from our website

This site contains links to and from other organisations’ websites. The IBTA’s privacy policy only applies to the IBTA website.

If you go to another website from this one, you must read their privacy policy to find out what it does with your information.

When you come to our website from another website, we may get personal information about you from the other website. Read those other websites’ privacy policies if you want to know about this.

Changes to our privacy policy

As we continue improving our website, we may update this policy. Any changes we may make to our privacy policy in the future will be posted on this page.