To mark Ependymoma Awareness Day (Monday, 10th May), the IBTA is proud to support the newly-released Ependymoma Key Issues graphic which has been coordinated by the Collaborative Ependymoma Research Network (CERN) in the United States along with other brain tumour organisations which together form the Ependymoma Advocacy Groups (EAG) initiative: CERN, the National Brain Tumor Society (NBTS), Robert Connor Dawes Foundation, PNOC Foundation, Ependy Parents, Tommy Strong, Astro Brain Tumour Fund, Fighting Ependymoma UK, and Adult Ependymoma Support Group.
Download the full size image here (download as pdf here)
The Ependymoma Key Issues graphic is aligned with The Brain Tumour Patients’ Charter of Rights which was launched by the IBTA and other brain tumour organisations in July 2020. The Brain Tumour Patients’ Charter of Rights is intended to address brain tumour inequalities across countries. It is also meant to stimulate debate and discussion. The Charter is meant to be a positive tool that can be used by all sectors of the international brain tumour community and is available in various languages here.
