Earlier this year, the IBTA announced the publication of its international survey on how COVID-19 was affecting brain tumour patients and their families during the first wave of the pandemic in the spring of this year. The survey, in seven languages, was done in collaboration with the Society for Neuro-Oncology (SNO) COVID-19 Task Force. The paper reporting the survey results was published in the journal Neuro-Oncology Advances and is freely available here.
In total, 1,989 participants completed the survey from 33 countries including 1,459 brain tumour patients and 530 caregivers.
We are now pleased to announce that - in collaboration with The Health Policy Partnership (HPP), Society for Neuro-Oncology (SNO) and the Division of Neuro-Surgery at the University of Toronto - we have just launched a plain language summary of the COVID-19 survey results, which highlights the key findings. This plain language summary has been produced with the agreement of the authors of the original report in Neuro-Oncology Advances and the Society for Neuro-Oncology (SNO).
To read the plain language summary of the paper on 'Brain Tumours and COVID-19: the patient and caregiver experience', please click here