The IBTA is excited to announce its participation in a new program at the National Cancer Institute, Center for Cancer Research, Neuro-Oncology Branch called NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare CNS Tumours). The program aims to advance the understanding of rare adult central nervous system (CNS) cancers by establishing and fostering patient-advocacy-provider partnerships and networks to improve approaches to care and treatment.
The IBTA is proud to partner with NCI-CONNECT to facilitate engagement with patients with select rare brain tumours and provide NCI-CONNECT educational and clinical trial information to patients. NCI-CONNECT goals are to:
- Develop an infrastructure across a network of national and international sites to study select rare CNS tumours.
- Collect, analyse, and share data to promote discovery and improve understanding of select rare CNS tumours.
- Use the network to facilitate the translation of discoveries into new therapies and methods to improve patient outcomes.