Last year, the IBTA ran two international surveys examining (1) “Brain tumours and COVID-19: the patient and caregiver experience” and (2) how COVID-19 was affecting brain tumour patient advocacy organisations . The results of these surveys were published in the peer-reviewed journal Neuro-Oncology Advances and can be found here and here. A lay summary of the first survey (“Brain tumours and COVID-19: the patient and caregiver experience”) can also be found via the IBTA website here. We are delighted that the results of these two surveys are proving to be an invaluable data resource for the scientific community and the not-for-profit sector.
We have now launched a follow-on survey on COVID-19 vaccine rollouts are impacting brain tumour patients internationally. It is for people over the age of 18 who have been diagnosed with any type of brain tumour (including metastatic brain tumours) and respondents do not need to have had a coronavirus vaccine. The survey will collect data anonymously on, for example, how the coronavirus vaccination programmes in different countries have been offered to brain tumour patients; COVID-19 testing; which vaccines brain tumour patients have received; and vaccine side effects in brain tumour patients.
The survey is available in eight languages (English, French, German, Italian, Japanese, Polish, Spanish and Urdu) and typically takes no more than ten minutes to complete. The deadline for submitting survey responses is 31st August 2021.
Links to the survey
English: https://www.research.net/r/IBTACOVIDVAX
French: https://www.research.net/r/IBTACOVIDVAX?lang=fr
German: https://www.research.net/r/IBTACOVIDVAX?lang=de
Italian: https://www.research.net/r/IBTACOVIDVAX?lang=it
Japanese: https://www.research.net/r/IBTACOVIDVAX?lang=ja
Polish: https://www.research.net/r/IBTACOVIDVAX?lang=pl
Spanish: https://www.research.net/r/IBTACOVIDVAX?lang=es
Urdu: https://www.research.net/r/IBTACOVIDVAX-ur – Please note that Urdu can only be accessed via this link.
QR Codes
Please feel free to distribute the QR code for the various language versions of the survey, which can be saved by right clicking on the below and selecting ‘Save image’ or downloaded from the IBTA website here. A separate QR code for the Urdu translation can be downloaded directly here.
English/Multilingual
Urdu
