Patient data is crucial to discover more about illnesses and develop new treatments. Patient medical data can be used for such purposes but it’s important that patient privacy is always protected. However, by sharing medical data, patients can make a difference to important research.
A new animated video on this topic has been produced as part of the COST Action CA18206 Glioma MR Imaging 2.0 European project known as GLiMR. GLiMR is supported by COST (European Cooperation in Science and Technology). The video explains to patients in plain language how sharing their medical data and at the same time having privacy protection (in line with the GDPR – General Data Protection Regulation) is possible, and why patient data is so very important.
The animated video is viewable below and in 17 languages (direct links below)
The video has been developed by Well Played, GLiMR Work Group 5, legal advisor Nils Broecks, Katya Van Driessche (DPO UZ Gent) and the International Brain Tumour Alliance (IBTA). The animated video project manager is Patricia Clement.
For more information on the GLiMR project, please contact glimr.cost.wg5@gmail.com
- Bulgarian (webpage / video / subtitled / download)
- Croatian (webpage / video / subtitled / download)
- Czech (webpage / video / subtitled / download)
- Danish (webpage / video / subtitled / download)
- Dutch (webpage / video / subtitled / download)
- English (video / subtitled / download)
- Estonian (webpage / video / subtitled / download)
- French (webpage / video / subtitled / download)
- German (webpage / video / subtitled / download)
- Greek (webpage / video / subtitled / download)
- Italian (webpage / video / subtitled / download)
- Norwegian (webpage / video / subtitled / download)
- Polish (webpage / video / subtitled / download)
- Portuguese (webpage / video / subtitled / download)
- Romanian (webpage / video / subtitled / download)
- Slovak (webpage / video / subtitled / download)
- Spanish (webpage / video / subtitled / download)
